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Let’s donate for a cause: Thalassemia

Let’s donate for a cause: Thalassemia

We rise by lifting others and we gotta keep rising. Right? Cancer, Autism, AIDS and what not. We are very much aware of these names. 

Have you ever heard of Thalassemia?

According to the DNA India, India is one of the most affected countries when it comes to Thalassemia, with around one lacs death recorded every year, even before the patient turns 20.

Thalassemia is an inherited blood disorder in which the body makes an abnormal form of hemoglobin. Based on the type, a person will show different symptoms.

Hemoglobin is the protein molecule in red blood cells that carries oxygen. The disorder results in excessive destruction of red blood cells, which leads to Anemia. Anemia is a condition in which your body doesn’t have enough normal, healthy red blood cells.

Thalassemia occurs when there’s an abnormality or mutation in one of the genes involved in hemoglobin production. You inherit this genetic abnormality from your parents.

There are three main types of thalassemia (and four subtypes):

  1. Beta thalassemia, which includes the subtypes major and intermediate.
  2. Alpha thalassemia, which include the subtypes hemoglobin H and hydrops fetalis.
  3. Thalassemia minor.

Some of the treatments include:

  • Blood transfusions.
  • Bone marrow transplant.
  • Medications and supplements.
  • Possible surgery to remove the spleen or gallbladder.

Your doctor may instruct you not to take vitamins or supplements containing iron. This is especially true if you need blood transfusions because people who receive them accumulate extra iron that the body can’t easily get rid of. Iron can build up in tissues, which can be potentially fatal.

If you’re receiving a blood transfusion, you may also need chelation therapy. This generally involves receiving an injection of a chemical that binds with iron and other heavy metals. This helps remove extra iron from your body.

According to Manoj Jhalani, IAS, Joint secretary, National Health Mission, there are about 65,000 to 67,000 beta thalassemia patients in our country, with around 8,000-10,000 cases added every year.

Only a limited number of patients can be cured by bone marrow transplant. Others may need lifelong regular blood transfusions and dependency on several medications and therapies such as Chelation. Both the options are not only a cost intensive procedure but also very traumatic to the child on regular basis. Some of the children lose their lives at a very early age while some live with a constant fear of dying.

sangeeta-wadhwa

Having a conversation with Ms. Sangeeta Wadhwa, a counselor and a motivational speaker, who has been herself fighting with Thalassemia since the age of five, T-Natur decided to be responsible.

Ms. Sangeeta has come a long way. She is a strong born lady and this life-threatening disease could never break her. She has wholeheartedly given her life to the well-being of thalassemic patients. Her heartbreaking yet motivating stories could be read and seen all over the internet.

The demise of her younger sister in 2010 was a moment she decided to devote her life to help those ignored kids and their unaware parents. Taking the inspiration from Ms. Sangeeta Wadhwa, T-Natur decided to come forward and join her in the journey.

T-Natur wants those children to feel ‘Cared, Supported and Heard’.

Everyone has to be INCLUDED.

At T-Natur, we pledge to help with the upliftment of the thalassemic patients.

T-Natur as a family pledges to be a part of the cause and donate 10% of it’s profits for the well-being, education and medications etc. of the Thalassemic patients. T-Natur as a family requests each and every one of you to come forward and donate as per your wish.

Let there be LIGHT for them. Let them feel a little FREE. And, Let them live a little more HAPPILY. Come forward and Join us.

Ways to contribute to the Thalassemic patients

  1. Buy our products and 10% of the profits directly go the accounts of the concerned organization.
  2. Donate directly by visiting the SHRI HASHU ADVANI MEMORIAL FOUNDATION or email at: hashuadvani@yahoo.com.
  3. Donate blood if you can’t donate money, helping those for transfusions.
  4. Take responsibility for a thalassemic child’s education for as long as you can.
  5. Spread awareness about Thalassemia.
  6. Donate directly to their bank with following account details: 

Shri Hashu Advani Memorial Foundation
Bank: Jankalyan Sahakari Bank Ltd.
A/c No: 011010100017734
IFSC: JSBL0000011
A/c Type: Saving Account

1 comment

  • This is so informative post, everyone should read and follow such kind of things in our life. Keep posting

    Thanks

    Ekta Shah

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